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We’re challenging ourselves, and others, to build a stronger focus on diversity, equity, and inclusion into our education and community engagement initiatives.

Building awareness and dialogue about racial differences and disparities in PBC.

Much progress has been made in primary biliary cholangitis (PBC) research and education, but the impact of race on PBC care and outcomes is not fully understood. Some Black, Indigenous and People of Color (BIPOC) patients with PBC describe experiences of not being seen and heard by their healthcare providers. In an effort to build awareness and dialogue around this complex issue, we convened a multidisciplinary panel of experts to review available data and share their perspectives both from the physician and patient point of view. Some questions we tackled include:

  • What do we know about PBC and race based on the available medical literature? What research gaps do we need to address?
  • How can patient advocates and the PBC community help address disparities in PBC care?
  • How can we improve understanding of PBC among healthcare providers and ensure the unique needs of all patients are addressed?
  • How does race impact clinical care for patients with PBC?

WATCH THE REPLAY

Exploring Racial Differences and Disparities in PBC Care

A roundtable discussion conducted in the U.S.

Downloads and resources

PowerPoint Slides

These slides include key epidemiology and outcomes data that you can use to enhance your educational presentations about PBC. Quotes from real patients living with PBC are also included.​

Fact Sheet

This fact sheet can be printed as a flyer or distributed as a PDF via email. It includes key facts about racial disparities in PBC, insights from PBC experts and patient advocates, and a checklist to help primary care and other referring providers recognize the signs of symptoms of PBC in all races and ethnic backgrounds.​

Email to Referring Providers

This template email can be used to help the primary care providers and other healthcare providers in your referral network to improve timely diagnosis of patients. It includes a simple checklist of symptoms and biochemical measures used to identify and diagnose PBC.