Patient Resources
Rejuvenating tomorrow starts with commitment today. That’s why we’re partnering with the liver health community to develop solutions that aim to improve lives and long-term health outcomes.
To learn more about resources available for patients living with liver diseases like PBC and PSC, check out the resources listed below.
GENERAL LIVER DISEASE PATIENT RESOURCES
Connect with liver disease advocacy groups.*
Education, connection and support for patients living with liver diseases.
American Liver Foundation
ALF’s mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease.
| Website: | liverfoundation.org |
|---|---|
| Facebook: | Main ALF Facebook Page |
| Life With PBC Facebook Group | |
| Twitter: | twitter.com/liverUSA |
| Instagram: | instagram.com/americanliver |
| Patient Forum: | ALF Inspire Patient Forum |
Global Liver Institute
GLI aims to improve the lives of individuals and families impacted by liver disease through promoting innovation, encouraging collaboration and scaling optimal approaches to help eradicate liver diseases.
| Website: | globalliver.org |
|---|---|
| Facebook: | facebook.com/GlobalLiver |
| Twitter: | twitter.com/GlobalLiver |
| Instagram: | instagram.com/globalliverinstitute |
| Email: | info@globalliver.org |
Community Liver Alliance
The Community Liver Alliance is dedicated to supporting the community through liver disease awareness, prevention, education, advocacy and research.
| Website: | communityliveralliance.org |
|---|---|
| Facebook: | facebook.com/CommunityLiverAlliance |
| Twitter: | twitter.com/CLiverAlliance |
| Instagram: | instagram.com/communityliveralliance |
| LinkedIn: | linkedin.com/company/communityliveralliance |
| Email: | support@communityliveralliance.org |
PBC PATIENT RESOURCES
Intercept has developed the Interconnect® patient support program to guide patients through disease education, treatment and financial assistance options.
Are you a person living with PBC or a healthcare professional who treats PBC?
This site is intended for U.S. audiences only.
Connect with other patients living with PBC, resources, the PBC Living® App and more.
This site is intended for U.S. audiences only.
Connect with PBC advocacy groups.*
Empowering the PBC patient community through information, peer connection and support.
PBCers
One of the largest PBC online support groups, which offers education and support to people living with PBC and raises funds for PBC research.
| Website: | PBCers.org |
|---|---|
| Facebook: | facebook.com/PBCersOrg |
| Twitter: | twitter.com/PBCers |
| Email: | pbcers@pbcers.org |
| Contact: | Carol Roberts, President |
PBC Foundation
A global patient organization providing support to people with PBC and their families and friends.
| Website: | pbcfoundation.org.uk |
|---|---|
| Facebook: | facebook.com/PBCFoundation |
| Twitter: | twitter.com/PBCFoundation |
| Instagram: | instagram.com/pbcfoundation/ |
| Email: | info@pbcfoundation.org.uk |
| Contact: | Chris Mitchell, Head of Education and Development |
Canadian PBC Society
This national organization is made up of regional groups of patients and other concerned individuals throughout Canada.
| Website: | pbc-society.ca |
|---|---|
| Facebook: | facebook.com/CanadianPBCSociety/ |
| Twitter: | twitter.com/PBC_Canada |
| Email: | info@pbc-society.ca |
| Contact: | Gail Wright, President |
PSC PATIENT RESOURCES
Connect with PSC advocacy groups.*
Education and support for the PSC patient community.
PSC Partners Seeking a Cure
PSC Partners Seeking a Cure is dedicated to providing education and support to PSC patients, families and caregivers and to raising funds to research causes, treatments and cures for this rare disease.
| Website: | pscpartners.org |
|---|---|
| Facebook: | facebook.com/PscPartnersSeekingACure |
| Email: | contactus@pscpartners.org |
*Not comprehensive of all advocacy groups. Intercept Pharmaceuticals does not endorse these organizations. The information/links are meant for informational purposes and are not meant to replace a physician’s medical advice.
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Exploring Racial Differences and Disparities in PBC Care